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Specialist Ichthyosis Dermatology Service

Are you a children’s nurse who really wants to make a difference? Are you seeking a role that is rewarding, autonomous and makes a real impact on families affected by a genetic condition? Then look no further.

We are looking for a dynamic, enthusiastic children’s nurse with experience of working with children, young people and families living with chronic diseases to take up the post of Band 7 Clinical nurse Specialist in dermatology- specifically responsible for patients and families with Ichythyosis to cover a 6-month Fixed Term / Secondment post. Experience of working across acute/community care would be beneficial but not essential. It is not anticipated that the successful candidate will have knowledge or experience of Ichthyosis, however, it is important to be aware that extensive travel is an essential part of the job, and the ability to work alone and unsupervised are important requirements of the job.

Ichthyosis is a rare inherited life-long condition and the common factor is extreme fragility of the skin and mucous membranes. In its most severe forms Ichthyosis is life limiting or progressively disabling. Ichthyosis is a rare disorder with approximately 1:100,000 people in the UK living with it. You will have to opportunity to work closely with the other CNS’s as part of the Epidermolysis Bullosa (EB) / Skin Fragility Team, working together to provide the best outcome for these patients.

Prif ddyletswyddau'r swydd

Why we need you:

• To act as a resource for specialised advice and support for patients and families affected by all types of Ichthyosis
• To provide continuity for patients and advocating for them to promote access to treatment and proactive management of problems that arise
• To provide an outreach diagnostic service and support of neonates, their families and involved professionals
• To co-o-ordinate the care for children at GOSH for out patient appointments and ward admissions
• To provide information and education to local healthcare staff including Community Paediatric Nurses, Health Visitors, GP’s Social Workers and Genetic Counsellors
• To help train nurses and other healthcare professionals in a local setting so that they may help families with day-to-day management
• To provide information and being a point of contact for nurseries, schools and colleges and offering visits to give advice on care and management of Ichthyosis
• To participate in research projects to help improve care pathways and quality of life for people affected by Ichythosis

Our organisation:

We are only one of two tertiary services within the UK NHS that care for children with EB. Most of the children and young people we care for are referred to us from other hospitals throughout the UK because of the highly complex or rare nature of their condition.

Gweithio i'n sefydliad

GOSH is committed to recruiting the best person for the job, based solely on their ability and individual merit as measured against the criteria for the role; through a process that is fair, open, consistent and free from bias and discrimination.

We are committed to being a diverse and inclusive employer and foster a culture where all staff are valued, respected and acknowledged. All applicants will receive consideration for employment without regard to race, colour, national origin, religion, sexual orientation, gender, gender identity, age, disability status or length of time spent unemployed.

We particularly welcome applications from BAME communities, people with disabilities and/or long-term health conditions and LGBT+ community members.

We have policies and procedures in place to ensure that all applicants and employees are treated fairly and consistently. We are proud to be accredited as a Disability Confident Employer, a member of Business Disability Forum and a Stonewall Diversity Champion.

We have active and Executive supported BAME, LGBT+ and Allies, Disability and Long-Term Health Conditions and Women’s staff networks. Staff networks are employee-led groups formed around interests, issues and a common bond or background. Staff network members create a positive and inclusive work environment at Great Ormond Street Hospital by actively contributing to the Trust’s mission, values and efforts specific to inclusion. All of our staff networks are open to any employee.